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newly diagnosed

Polymyalgia Rheumatica (PMR) | Last Active: Sep 19 5:47pm | Replies (38)

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@reets70

I was diagnosed in March 2023, and was very successful with methylprednisolone. Within two days, I was able to walk without pain, but long run, the steroids damaged some tendons, caused swelling in my legs, disrupted my sleep and gave me heart palpitations! I tapered off within six months, but I was back down with terrible back problems. Im now back on prednisone, with the same side effects, but anything is better than suffering with that pain!

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Replies to "I was diagnosed in March 2023, and was very successful with methylprednisolone. Within two days, I..."

I can relate to everything that you were saying!!! I feel like I am between a rock and a hard place! if I take the medication I feel pretty crummy each time different situations. if I don’t take a medication my pain gets worse and worse until I have no choice. Each medication has so many side effects and they are not great for me!!! I try my best to wait as long as I can before I go on something. For me each medication becomes pretty bad!!! right now I’m just going one day at a time and hoping for the best!! my very very best wishes to you!!!