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Does a change in CA19-9 indicate change in tumor?

Pancreatic Cancer | Last Active: Nov 16 6:14pm | Replies (41)

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@mnewland99

Yes @steveron that is the USC motto and I like it much better than the UCI motto which I think is just “Zot Zot” which is what we say to another alumni or current student (lol it’s the sound of our mascot - anteater). I 2nd your advice about Kaiser; I started out with them and they didn’t put my back pain and suddenly very sharp rise in blood sugar that couldn’t be controlled and my dads history of pancreatic cancer to give me a proper diagnosis early on. I turned 65 in July 2022 and was able to change my insurance. Is there any insurance you could obtain now (cancer insurance as some call it or through an alumni circumstance) now? I was willing to pay cash last year in December, but most facilities didn’t want to even to take that until January this year as I was switching to a PPO. They thought my expenses for cash would be too great and of course the holidays forced me to wait until January this year.
I’m also seeing Dr. Lee and hoping my mapping next week shows still just the 1 lesion. It’s good that your wife will be doing the GA which for me works well on lesions. I’m also praying her upcoming biopsy will offer the opportunity to obtain a sample to run her mutations again. It’s a tough battle, but there is hope at the end of the tunnel; even if for just a few more months to spend with our loved ones. I wish you both the very best on this journey, and it appears you are making sound judgments on her care.

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Replies to "Yes @steveron that is the USC motto and I like it much better than the UCI..."

our son-in-law went to UCI and I have a UCI Dad shirt and hat somewhere. We live in San Diego and if you care to share, where are you?

Kaiser does not cover out-of-network services, so we pay cash for those. We found cancer insurance policies, but none would cover my wife because of the PDAC and she is over 70.

@markymarkfl recently posted about Histotripsy, which is FDA approved to use sound waves to treat liver lesions. Here are info links in case you didn't already have them:
https://histosonics.com/find-edison-provider/
https://myhistotripsy.com/
https://nyulangone.org/news/nyu-langone-cancer-specialists-use-pioneering-histotripsy-technology-noninvasively-treat-liver-tumors
We did not know about this treatment when we met with Dr. Lee last month. @wjk posted this week about his discussion with providers that "the desired abscopal effects from histotripsy treatment have yet to seen in patients with liver lesions secondary to pancreatic cancer." Yesterday UCSD told us it might be appropriate after my wife has had some GA treatments. I'm still confused as to why it couldn't be given now as sound waves are not radiation, and therefore should not affect GA schedule. We will ask again.

Your comments are always on point, helpful, encouraging, and appreciated. Thanks especially for your kind thoughts about my wife, which we echo back to you.