At first, I kept my PCa diagnosis to a small group of trusted family and friends, especially since I was still processing it. (14.7 PSA, Gleason 3+4=7 Intermediate Risk due to the number of cores 10/14 showing some cancer, Low Intermediate .51 Decipher, and no spread according to PMSA PET Scan.) As my treatment plan ramped up and we moved towards the ultimate five rounds of SBRT, I became more open about it, especially if other guys asked about it.
And then I did something out of character for me: I started posting about it on Facebook to help raise awareness of PCa and one way it can be treated, In my case, that was a combo six month course of Eligard and five rounds of SBRT. I was pretty open about the side-effects I experienced too, mostly mild but the lack of T really impacted by fitness programs. People were amazingly supportive. And a lot of guys IM'd me with more personal questions, and some pressed their PCPs for their very first PSA testing. Fast forward from May 2024 when I completed radiation to August where my first follow up showed a PSA of .17. And I posted the before and after test results too.
It was cathartic in a way to be able control my own narrative, and not let PCa define me or drive me underground. Everyone is different, but I stand by my own approach. :-). Best of luck fellow warriors, you got this.
I had the same experience. I kept the matter very private until a friend told me that he shared his experience publicly to help educate other men (and their partners) on prostate cancer, treatment, recovery , and the challenges involved along the way. I decided to share my journey on my Facebook page. I’ve never looked for sympathy but have appreciated the support I’ve received along the way.
I’m on Facebook as “Roberts Luthiery”. Anyone on this forum can send me a friend request to see my progress and life antics.