Not all will help with the neuropathy it’s not their specialty. He is starting me on IVIG therapy next week for my autoimmune severe axonal sensorimotor peripheral polyneuropathy
Small fiber neuropathy
Cardiac autonomic neuropathy
We are starting 5 consecutive days the infusions last six hours a day. Then when I start having problems we will change it up but 5 days every three months. My neurologist recommended him they were friends. The one that passed away he already had IVIg therapy approved but the rest of his practice would not give it to me. He has watched me rheumatologist struggle to find a neurologist for three years. My neuropathy has gotten to the point where my husband sometimes has to feed me my hands shake so bad from the motor neuropathy and I have to have a cup with a lid otherwise it spills all down the front of my clothes. I tried to do dishes my hands were shaking dropped a knife and it went into my foot. I pulled out the knife foot bleed cc a lot but I am really struggling. The pharmacist said that this might reverse some of the nerve damage. It is used for CIDP.
Panzyga is what we are going with