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@dadcue

Did anyone ever tell you that your taper was too fast?

Actemra made a mockery of slow Prednisone tapers. You were lucky not to be on Prednisone very long. Did you ever feel any symptoms that you would attribute to adrenal insufficiency?

My adrenals must have been resilient considering I took Prednisone for 12 years. My cortisol level was low once I reached 3 mg of Prednisone. I had to stay on 3 mg for 6 months waiting for my cortisol level to improve.

Once my cortisol level was adequate, my endocrinologist said there was no need to taper. From 3 mg, my endocrinologist said I could discontinue Prednisone but I should take Prednisone again if I "felt the need." I was worried about an adrenal crisis but that didn't happen. By that time, I was confident Actemra had PMR under control.

I was just annoyed that Actemra wasn't tried a lot sooner. My quality of life on Prednisone for 12 years wasn't very good.

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Replies to "Did anyone ever tell you that your taper was too fast? Actemra made a mockery of..."

Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in October, 2023... Started with 60mg Prednisone and after 7 months started weekly Actemra injections (while still on 10mg Prednisone ). I am off Prednisone since end of July and haven't had any relapse. Have you heard anything about tapering off or discontinuing Actemra ?
Thanks and take good care of yourself.