I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1 malignant tumor and a few smaller ones. But there are multiple other small lumps and tumorlets on other lobes. Because the malignant one tested as a typical carcinoid tumor, and I have no major problems, I’m not receiving any treatments at this point, just scans every 6 mos. I am only 1 yr post op and will have my 2nd scan next month. I do not have a net specialist, although I did have my surgery at MSK, New York. After this next scan, I may try to get a second opinion in Philly to be sure they concur. So far my main symptoms are shortness of breath on exertion, such as stairs, hills, or walking too fast. I try to walk every day. Forgot to mention I am 75. I do not have the coughing that so many have, but I do often clear my throat from deep inside my lungs. But it’s not really a problem for me. I feel grateful this was even found, because the tumor was incidentally found while I was having a routine heart scan. While it was very disconcerting to realize my lungs have this problem, I’m learning that people can live a long time with it, and there are treatments available if needed. Best wishes to you.