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Side effects of drugs

MAC & Bronchiectasis | Last Active: Sep 30 3:31pm | Replies (42)

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@rbl

I too was terrified of the meds but the threat of what would happen without meds was also terrifying. I know from reading posts here that we are all different, some manage meds. easier than others. When I was on meds for 18 months I was not a happy camper. Just getting diagnosed with a lung disease was bad enough, I had my good days and bad. My body seemed to adjust some to the meds after a while and I survived the 18 months. I tried to just get through one day at a time, but some days it wasn’t easy. Between taking meds and supplements at the correct times, eating to gain weight, airway clearance and getting in exercise, I felt so regimented. When I first took meds. I felt like I was taking poison, then I had to change that mind set to telling each pill to go get that Mac… you have to take one day at a time and hope for the best. Are you taking the big 3 daily or 3 x week? I was switched to 3 x week after a while and it was much better. Good
luck and take each day as it comes.

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Replies to "I too was terrified of the meds but the threat of what would happen without meds..."

I'm supposed to take the 3 meds daily. I haven't been able to start taking them yet because my pulmonologist has ordered baseline reports from an audiologist; ophthalmologist; immunologist and also an EKG. It seems like it's taking forever to even get these appointments scheduled so I can start the meds. My insurance finally approved my ophthalmologist appointment this morning, but they have no opening until December. They are going to try to work me in more quickly, and I'm praying they can get me in sometime within the next week. It doesn't make that easier due to the hurricane that's going to hit Florida this week. In the meantime, I keep reading and researching bronchiectasis and MAC. I was really bummed when I learned yesterday there's no cure for it. I guess the strong antibiotics are supposed to clear it as much as possible and inhibit growth of the bacteria.