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← Return to Diet restrictions with Lanreotide?
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Diet restrictions with Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (16)Comment receiving replies
Dougt - There is a good website you might checked out http://www.netrf.org (Neuroendocrine Tumor Research Foundation) that has a link - Nutrition & NETS that might be very helpful for you.
It's not so much about food and the Lanriotide, but foods and your body - particularly if you've had intestional surgery. Your system just cannot digest and process foods like it used to. Vegetables with skins on are harder to digest, and some (brocoli for example) can cause more gas).
I was diagnosed with Stage 4 neuroendocrine cancer in March, 2018 when I had a blockage in my small intestine that was a neuroendocrine (carcinoid) tumor. They removed 10". This was after eleven years of misdiagnosis. In July, 2019 I had another blockage in my large intestine and lost 11". So I've lost 21" total. So I certainly can't eat like I used to.
There are several other sites that also have information about eating/nutrition while dealing with this cancer. LACNETS.org is a great source of helpful information.
I hope this is helpful.
Replies to "Dougt - There is a good website you might checked out www.netrf.org (Neuroendocrine Tumor Research Foundation)..."
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Phyllisden, thank you for the information. At this time, I will continue with no diet restrictions as I don't seem to have any symptoms of blockage or carcinoid syndrome.
My situation is similar to yours. After 15+ years of being told my digestive issues were all in my head or related to "micro-colitis" or IBS, I landed in the hospital to have a blockage removed along with 16 lymph nodes and approximately 34-inch of small and large bowel combined. Spent over 30-days in hospital and an additional 2-weeks in rehab. That was 8 years ago this month. Until a year ago, things seemed to be going well and then I was diagnosed with stage 4 carcinoid with tumors on liver, pancreas, mesentery, and bone. My diet has slowly returned to what it used to be. However, I no longer consume alcohol or spicy foods.