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Dexa Scan after 18 mo on Tymlos

Osteoporosis & Bone Health | Last Active: Sep 19 9:36pm | Replies (11)

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@zooie

I'm wondering how you are able to navigate having different specialists, each with his own opinions. Are your specialists aware that you are also working with other specialists?
Since I've only been recently diagnosed with severe osteoporosis, my primary concern was to get on Tymlos asap and I am currently only working with an endocrinology PA. However I'd like to work on building a team with doctors who specialize in osteoporosis. I'm wondering what the best approach might be.

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Replies to "I'm wondering how you are able to navigate having different specialists, each with his own opinions...."

@zooie I have had a very good endocrinologist at a major teaching hospital for 20 years. He does not do bone markers and says they give an incomplete picture of what is going on in bones.

Two years ago I saw another endo who does bone markers a couple of times and yes, told her I was also seeing the other endo.

I have also talked with McCormick at various times over 15 years or so. My endo doesn't know I talk to McCormick though I have mentioned McCormick's use of bone markers.

McCormick is not on my portal, obviously, so there is no need to tell any doctor about him. MY PCP knows because I ask them to order bone markers. I have considered talking to my endo about how everyone is reading "Great Bones" and watching videos and discussing bone marker testing so often!

You don't need a team. You do need a doctor you can trust. Osteoporosis is a long term issue with long term treatment for many of us.

When I had cancer I got 4 opinions. Seeing different providers is not making a team. It is just getting different perspectives and then deciding which one to follow or in some cases combining them.