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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (584)
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@marylou329

Hi Lori,
Yes, it's D+4. Stem Cell day Sept. 13 went smoothly. However, on Saturday when we checked my temperature it was 102 even though I was feeling fine. So I was sent to the ER. After numerous testing they could not find an infection and my team and I decided to stay in the hospital through my Cytoxin Infusion. I will be going back to out patient transplant on Thursday. It's been a very confining few days tying to the machine who I call Harry.

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Replies to "Hi Lori, Yes, it's D+4. Stem Cell day Sept. 13 went smoothly. However, on Saturday when..."
Lori, Volunteer Mentor | @loribmt | Sep 17 2:20pm

Hi Marylou, Congratulations! I’m happy to hear everything went smoothly. You’ve had enough drama with this adventure, right? ☺️
Sorry to hear you ended up back in the hospital but that’s not uncommon. I returned too, not for a fever but another issue. It’s comforting to know we can be readmitted very easily. Sounds like you’re in good hands.

LOL I named my ‘machine’ Christopher…as in Christopher Walken. (We were always walkin’ around the floor together so I felt it was apt). My nurses even printed out a picture of C. Walken and put it on the IV pole! And the unfortunate, though ironic thing, was about 5 months later, when my hair was growing in I bore a strong resemblance to Mr Walken. 😂
Wishing you continued smooth sailing. Generally the first 2 weeks are the most challenging with how crumby you might start feeling as your blood numbers drop over the next few days. But better days lie ahead once your new stem cells engraft and they start producing new blood cells, especially those all important neutrophils!
Sending an airhug!

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Lori, Volunteer Mentor | @loribmt | Nov 19 8:34am

Hi Marylou! I just realized we haven’t spoken in quite some time! Now you’re several months post BMT so it’s definitely time to check up on you. How are you fairing with your new stem cells?

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