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Desperate: Is there any hope for neuropathy?

Neuropathy | Last Active: Oct 23 6:49pm | Replies (118)

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@bettyg81pain

I am exactly where you are with this darn neuropathy-used to never stay at home-was always out with friends playing golf, pickleball, etc and now by the time I take all of the drugs for pain-I hardly can remember my name!! Am very interested in Loma Linda or Mayo-Rochester (their neurology dept is supposed to be the best).

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Replies to "I am exactly where you are with this darn neuropathy-used to never stay at home-was always..."

That was me - hiking, yard work, painting walls, enjoying life then life came to a grinding halt. Mayo-Rochester is ranked #1 for Mayo and I’ve been there 10x for family members - I could give tours. The beauty of Mayo is you go there, you see all the specialists, have all the tests in a compressed window of time and at the end, they have all consulted - a team approach - and come up with a diagnosis and a plan. It is the Hogwarts of medicine. We’ve always left feeling so much better and more hopeful than when we got there. They don’t know what caused mine and I feel that it is important to know why so they potentially could keep this from progressing. Yesterday I started taking 100 mg Gabapentin 4x/day. I find that the lower dose spaced out causes a lot less brain fog than a higher dose all at once. I have to be able to drive - and think! Keep me posted and let me know what is helping you along the way. Communicating with others is helping me feel less alone.