Is this normal on ADT? Body hair gone

Perhaps your RO can just give you the 6 months and be done with it? 7 1/2 months seems like a weird interval - usually done in increments of 6 months.
Also, what do your MD’s say about your weight
loss? Are they concerned? Do blood tests show anything else unusual going on?
Be sure you are getting more protein than you need. muscles can waste away on ADT and all the working out won’t do anything. Possibly low sugar Ensure or Atlas Bars from Amazon might be a good idea.

This is really weird. The one thing that is known is that drugs like Orgovyx can cause weight gain not weight loss.

I have neither gained nor lost weight since being on Lupron and then Orgovyx, but I have to carefully watch my weight every day and base what I eat on what I weigh.

I hear from a lot of people on weekly advanced prostate cancer meetings I attend complaining about how much weight they have gained, not lost. Give it time you probably will gain it all back.

At one point a couple of years ago (while on Lupron for four years) I lost about 5 pounds and was worried I couldn’t gain it back, that was very short term, gained it all back in a short period.

Being on drugs like Orgovyx can cause you to get belly fat. After seven years I have some, but keeping my weight under control keeps it from getting much of a bearing on my overall weight. That belly fat usually adds weight. Have you noticed that?

I'm on six months total. I have 1 1/2 months to go. Sorry for the confusion. My MD's don't say anything--they barely even respond to my messages and I go to a major cancer center. I've been trying for almost a month now to get some information I need for work from them and the admin assistant just keeps saying "we'll send it soon."

My bloodwork so far has all been normal. I do feel nauseous a lot especially about an hour after I take Orgovyx, lasting about two hours, but I don't want to mention this to my radonc or he will stick me back on Lupron which made me suicidally depressed plus I've heard it takes forever to wear off.

I drink whey protein powder and milk for breakfast before I go to the gym.

Yes, even in my now-gaunt state I have a belly. I always prided myself on staying in shape so I am ashamed and embarrassed to even be seen. I've given up any activities that require me to remove my shirt such as swimming, or anything that requires me to use a locker room. I try to work out at 5:30 AM or after 8 PM when there's nobody there to see me.

I really feel you, man. I’m only on week 6 and so far so good; but I know it’s early days for me.
The ADT does give you a belly. I see it a bit already even though I have no external fat or blubber - must be visceral fat but there’s nothing you can do about it. Let’s both hope it goes away when we’re done since having a gut makes us feel like losers - at least in OUR minds.
It’s ridiculous to judge ourselves that way, isn’t it? Funny, but I don’t judge others who are in less than optimal shape - in fact, I almost envy them, comfortable in their own skin and not hung up on ‘looks’. They actually seem happier!! Forchrissakes I’m a 70 yr old man - when the f**** am I gonna kick back and take it easy on myself??! I think you are kind of the same - as are many of the guys on this board. All over-achievers ( runners, canoers, hikers, skiers) who push themselves thru ADT. We cannot accept the fact that our bodies have betrayed us after all the exercise, nutrition and care we’ve given them….damned ungrateful if you ask me…but there it is…
I am shocked that your care team is so aloof. I am at Sloan Kettering and I was under the impression that due to their elevated reputation in cancer care, they would have a huge chip on their shoulder and treat me like a mere nuisance for even daring to ask a question….NOT SO!! They have been amazing, answering any question at all within 24 hrs either via email, text or phonecall. I have an RO, a PA for hormones and bloodwork, a nutritionist for diet and bowel health and a support staff second to none. I would lose my mind if I was treated the way you’ve been; there are NO excuses for that and I am at a loss to recommend anything you can do on your end.
In an extreme case you could go to a different provider in the same hospital or go to a different hospital center altogether before you start your radiation ( if you have not already completed it).
They say that you never change horses midstream but every time in my life that I felt the horse not up to the rest of the journey I HAVE switched and haver NEVER regretted it. Hope you make some headway going forward. Good luck, buddy!

Wow I go to MSK also and my experience, other than Dr Mulhall, hasn’t been nearly as comprehensive as yours. I had to initiate contact with Dr Mulhall myself. I was given a radiation oncologist and that’s it. They’re the ones that take a long time to answer questions.

When I was put on ADT I asked the side effects and was just told hot flashes and tiredness and nothing more. I had to push to get off Lupron and onto Orgovyx.

You’re right about the body stuff. It’s weird isn’t it. I have friends who have bellies and a couple who are outright fat and I don’t judge them at all. Maybe I’m my own harshest critic and nobody else really gives a crap.

Wow, which Sloan do you go to? I see Dr Barsky and his team in Commack. He’s young and pretty cool. He put me on Orgovyx from the getgo.
Initially I saw Dr Grossman whom I really did not care for but he left for Florida or something and I was reassigned to Dr Barsky. What you describe is exactly what I thought Sloan WOULD be, but it turned out a lot better.
And yes, no one judges us more harshly than we ourselves do. In my case I realized was never gonna be the best looking guy in the group so I decided to work at being in shape - by that I mean toned and no jiggly fat, not muscle beach with bulging biceps. So that’s what I’ve always aspired to and my wife always makes fun of me for passing up the dessert cake or the ice cream, ‘But you’re so skinny!’ She yells…
Now I EAT the cake, the cookies and whatever else I want because I have the perfect excuse for getting fat - ‘ It’s these damn hormones!’ I tell her. But of course I get on the treadmill the next day and punish myself for being ‘weak’….🤭

Keep in mind ... side effects are listed as "possible side effects". Not all men will experience the same side effects. As an example, hot flashes are listed and the data I've seen indicates 53% will experience this. Personally, my side effects include hot flashes, fatigue, and weight gain. The hot flashes can be rather annoying.

I saw a sexual health doctor and he has me scheduled for testosterone tests starting in November which will be one month after ADT concludes. Unfortunately, he said that my testes had atrophied more than usual and that there was a "good chance" (I couldn't get him to give a percentage) that my testosterone will never recover but that TRT replacement therapy can be considered two years after stopping ADT.

That's a LONG way away so was kind of a possible setback, but I'm still going to hope for the best and, once ADT is finished, keep working out a lot, start taking zinc, and eat a lot of oysters.

I was on ADT for two years after my BioChemical Recurrence (BCR) and my testes became the size of raisins. I chose to try intermittent ADT and not quite three months after stopping Orgovyx, my total testosterone measured 534. There is hope, but no guarantee.