@kristyinoregon You ask a good question about prednisone and cell cept. I think that the first time it didn’t help was because it was probably too early. I don’t know if all the lesions were gone or not. At that time the primary doctor was out on maternity leave (but she’s back now!). So, the primary doc came back and she is fabulous! She has her way of doing things. I was given 8 months of chemotherapy and then restarted on Cell Cept and I’ve been OK since. Now, I’ve added rituxan. I really, really hope it works this time. Your doctors will keep trying and you get to be patient. It can take awhile to get into remission. It all depends on how many lesions you have. Nothing with Clippers acts quickly, unfortunately.

Hi Kristy - just chiming in with a quick note here. I received Pred megadoses via IV while I was originally hospitalized. It was several doses of 1000 mgs. and it totally worked. It took 7 months to get off the Pred after that. Now, two years later, I'm just doing the Ruxience infusions every 6 months and symptom free. I'm 57 now. The pred was a real whallop but totally worth it for me. I train every day (weights & cardio) so I can be ready if I ever need to go back on pred.