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@sueinmn

I offered the information to my doc when she was talking about trying to impress the importance of airway clearance on all of her patients, and she immediately handed me her clinic email address.

We all need to remember that these docs can be hard to find because BE and NTM are rare conditions. I am fortunate to live in a population center of 4 million people with many teaching hospitals and well-established large multi-specialty clinical practices. But it took me six years of persistence to get to her.

@irenea8 I have found that there are many very good to great docs, but they get beaten down by "the system." This woman is irrepressible, and hasn't let it happen. It probably helps that she has been with the clinic long enough, and is popular enough with patients and all the other staff, that she gets a little more leeway. My pain doc is the same way - when she couldn't keep up with the rigors of primary practice, she "reinvented herself" by going back for more training in pain and geriatrics - on her own time & dime. I am about to meet my newest cardiologist (3rd this year) tomorrow and heard he is like this.🙏

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Replies to "I offered the information to my doc when she was talking about trying to impress the..."

I thought about doing the same thing with the two local pulmonologists I have seen since they had not told me about AirWay Clearance Therapy/Methods themselves....I thought about carefully asking them if they would be interested in having the airway clearance information websites/you tube videos I have found. So again, thanks Sue.....I will move "forward and onward" with my thoughts of asking them and as well finding a doctor locally that is not 'jaded' or so frustrated because their patients don't have the self discipline to do what they need to do for themselves and often expect the doctors to have a miracle pill/cure up their sleeve so that they, the patient, don't have to work so hard at helping themselves. I had a discussion with my wonderful PCP about this and how he handles it....and he implied you just learn to cope with it. Also, as with many things there is that thing called politics in the medical field, and finances, that also plays a part in what happens to our good doctors and neither helps them or the patient. (Off my soap box now.) It was helpfull to hear your journey with finding doctors and the changes you have gone through with doctors for various reasons. We are not alone and often in the same boat, for all of us, all over the country in finding doctors for ourselves. Barbara