Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

First, prayers are with you and your family. I was diganosed in March 2023 with ILC, Stage 1a, no lymph node involvement, HR/PR+, HER2-, ONCO DX 10. I had an MRI, following my initial diagnosis, and they found IDC on the right side, also Stage 1a, no lymph node involvement, HR/PR+, HER2-, ONCO DX 18. I was 52 at the time. I chose a double mastectomy, grateful I made this decision early on, with the ILC diagnosis. Turns out once my mastectomy was complete I had two focuses of DCIS in breast with IDC, and LCIS and ADH in the left breast. I had annual mammograms, and at times Ultrasounds, at a very progressive breast cancer center. It is very scary. I have recovered well, I take Anastrozole daily. The mental game can be a lot, but I workout, control my diet, and almost completely avoid alcohol. Go to the Lobular Breast Cancer site, they offer so much wonderful information. You've got this, one day at a time. I too had small children, 10 at the time. They were wonderful, grew up a little faster, but they are doing well. I encourage you to reach out to anyone who will listen, the emotions run high. You will do great, ask lots of questions and advocate for yourself. I will say I chose the mastectomy because the thought of going back for Mammograms, MRIs and Ultrasounds every 6 months was overwhelming for me. My mastectomy went well, slow recovery, but I'm feeling good 18 months later.

Hi, I had DCIS stage 0 & had a right breast mastectomy w/no chemo or radiation. After yours w/no chemo or radiation, were you put on harmone therapy? I was put on Anastrozole 1mg & could not take it, stopped after 3 wks. Not taking anything right now.