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Desperate: Is there any hope for neuropathy?

Neuropathy | Last Active: Oct 23 6:49pm | Replies (118)

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@julbpat

When I read posts like this, I have to mention Tegretol (carbamazepine) again. You can read my earlier posts about my 30+ year history with Tegretol. It takes away the burning pain. I’ve tried all the standard medications.

This summer, I asked my neurologists about trying some other seizure medications, since Tegretol seemed to cause rapid and continuing weight gain for me. I weaned off of Tegretol with an instant return of burning pain in my toes. We tried Lamotrigine first, then Trileptal. Neither worked. I endured a lot of neuropathy pain for this self-inflicted experiment! A few weeks ago I threw in the towel, and am now back on Tegretol. Blessed relief within a week! 1000 mg per day seems to be my therapeutic dose.

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Thank you so much for this help. The burning is the worst.