Sorry Sue have to ask. Were you referring to Baylor having a doctor " well-known among the BE/NTM experts is already there" as being at Baylor? Do you know that doctors name or is that one of the "lost track" pieces, which I sure do understand how that happens with so much information received, so much information changing etc. and time given to all in life.
Yes, my concerns have been how long can I travel by myself from OKC to Plano/Tyler at 81 and 11 months of age. I know, more than likely, not that much longer. no matter how stable my MAI/BE is. I am still working on finding the best doctor for me, pulmonologist, here in OKC. I have an appointment set up with a pulmonologist after the Tyler tests and visit with a pulmonologist at OU associated with OU Universtiy Medical School and Hospital system. One reason also tying the doctor at OU is that there is a good ID doctor at OU who may or may not prefer to take patients out of the OU system. I tried to see the ID doctor and he suggested I look for one in the other health system I was in! (Not enough doctors today available for all those needing them.)
Thanks, Barbara