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@californiazebra

@gprior Hi Gloria.
Sorry you have a tumor by your heart and need more surgery. No, my tumors are not near anything other than scattered across both lungs. I was told if someone has one tumor they will likely remove the lobe it is in, but since I have over 50 tumors, we can’t remove all my lobes and want to preserve as much healthy lung tissue as possible. That’s why I had microwave ablation. We only did it on the largest tumor because they were worried it might metastasize. We will do others in the future if any suddenly take off from the pack. Are you being treated by a multidisciplinary NETs team?

I have breast cancer too and my local BC oncologist was just going to refer me to a thoracic surgeon until my pulmonologist told me about NETs specialists. My treatment would have likely been very different without that good advice. Experience with NETs counts. My NETs team is an hour away. Blessings to you.

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Replies to "@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,..."

Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon and lung specialist and the team they confer with eg oncologist, Radiology and pathology. I guess we put our faith in the drs we trust,. My shortness of breath has increased over many years , because of heart problems my difficult breathing was always thought to be because of that but after ,it was found I had dipnech 6 years ago when the half lung was sent to pathology hence the shortness of breath. Obviously I'd had dipnech for many years. Thank you again