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Hearing Loss: Come introduce yourself and connect with others
Hearing Loss | Last Active: 2 days ago | Replies (1517)Comment receiving replies
Hi, I’m new here. I’m 43, and experiencing hearing loss for about 10 years at least. My mother lost hearing at young age also. Interested in finding reasons why. I have very complicated medical profile, from autoimmune to Connective Tissue Disorder, early onset widespread bone loss in multiple joints from osteoporosis to Avascular Necrosis. Now, dealing with new Pulmonary ans Respiratory Disease and Lymphatic issues, hernia, compromised Thymic gland and more. I’ve previously had to have gallbladder and appendix out, fought liver issues, which thankfully is mostly under control. I deal with widespread pain and neuropathy, as well, as advanced degenerative disc disease that I’ve had since my early 30s, and many more back/spine issues. I believe there a probably major Neuro issues never diagnosed.
I’ve had one hip replacement due to a vascular and necrosis and the other one still needs to be replaced, but I never recovered from the first replacement, so I’m waiting on the 2nd bc my immune system crashed after hip replacement. Globulin subclass B disorder.
I believe it’s all connected somehow and searching for answers.
Replies to "Hi, I’m new here. I’m 43, and experiencing hearing loss for about 10 years at least...."
You don't mention results form hearing tests. That can determine type of hearing loss
My early hearing loss was due to otosclerois in just one ear. It can run in families.
I had a simple surgery (stapedotomy) and I got my hearing back immediately.
"a disorder, sometimes hereditary, in which there is formation of new bone around the base of the stapes (bone of the middle ear), resulting in progressive hearing loss. ... The exact cause of otosclerosis is unknown. It may be passed down through families. People who have otosclerosis have an abnormal extension of sponge-like bone growing in the middle ear cavity."
Surgical procedures: A stapedectomy and a stapedotomy are both surgical procedures that treat the stapes bone in the middle ear to improve hearing loss:
Both procedures are performed through the ear canal using an operative microscope. The main difference between the two is that a stapedectomy removes the stapes bone, while a stapedotomy creates a hole in the stapes footplate
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With all the health issues you describe, it is highly possible that medications you have taken for them could have ototoxic results. There is considerable information online. Here's a link to one of the articles posted by the National Institutes of Health. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3138949/
Have you mentioned your acquired hearing loss to your treatment team?