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Anyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (29)Comment receiving replies
In reply to your having had an ablation of a tumour I hadn't heard of it done let alone being offered in preference to surgery, I am to have more surgery because of the position of one particular tumour , was yours close to other tissues?? Thanks gloria
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@gprior Hi Gloria.
Sorry you have a tumor by your heart and need more surgery. No, my tumors are not near anything other than scattered across both lungs. I was told if someone has one tumor they will likely remove the lobe it is in, but since I have over 50 tumors, we can’t remove all my lobes and want to preserve as much healthy lung tissue as possible. That’s why I had microwave ablation. We only did it on the largest tumor because they were worried it might metastasize. We will do others in the future if any suddenly take off from the pack. Are you being treated by a multidisciplinary NETs team?
I have breast cancer too and my local BC oncologist was just going to refer me to a thoracic surgeon until my pulmonologist told me about NETs specialists. My treatment would have likely been very different without that good advice. Experience with NETs counts. My NETs team is an hour away. Blessings to you.