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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: Nov 20 5:25pm | Replies (30)Comment receiving replies
Replies to "I am 75 and was diagnosed 6years ago, I had half my right lung removed and..."
@gprior
Have you tried octreotide injections for respiratory symptoms? It has been life changing for me. I coughed all day long for 30 years straight! It was miserable. The octreotide stopped that and improved shortness of breath upon exertion. They told me the octreotide may not work forever but I’ve been taking monthly injections for 3.5 years and so far so good. I did not have and lung lobes removed. Blessings to you!