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MAC & Bronchiectasis | Last Active: Sep 17 4:42pm | Replies (53)
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I have my third appointment with Dr. McShane mid October regarding my MAI/MAC/Bronchietasis. I travel from OKC to Plano and onto Tyler the next day. So far I have not been told to start antibiotics..
I understand that Baylor is going to establish a Bronchiectasis Clinic. Have you heard anything about that?
I have thought of getting an inversion table but I have a hiatal hernia/silent reflux. Do you have reflux? I was told with reflux certain positions are to be avoided. So curious if you have acid reflux and how you do with it with the inversion table.
I did see Dr. Mark Millard at Baylor for a one time consultation visit. He maybe retiring soon.
Barbara
Replies to "I have my third appointment with Dr. McShane mid October regarding my MAI/MAC/Bronchietasis. I travel from..."
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My new pulmonologist mentioned it today. The doc, well-known among the BE/NTM experts is already there. We had co many conversations I lost track of them all.
But take heart everyone, those trained at Mayo, NJH and other great centers are spreading out. You just have to do some searching. There is a lot to be said for being treated close to home. Remember, you will have this disease for the rest of your life, and eventually you will be glad you don't have to drive for two days, or take a flight, and stay in a hotel to get good care.