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Pulmonary 🫁 mac disease

MAC & Bronchiectasis | Last Active: Sep 17 9:25pm | Replies (20)

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@blm1007blm1007

I have MAI/MAC and Bronchiectasis. Apparently all is not bad enough to begin antibiotics as told to me by NJH pulmonologist and further not told to me by the BE doctor in Tyler, Tx. In addition to not being enough bacteria and also moderate mucus plugging I feel well, appetite good, gaining some weight, and sleep well. NJH philosophy is most often, depending upon all factors and the patient's overall picture, appears to be 'watchful wait and see" approach. I was/am happy with that for me, so far. Did you receive the packet and information from NJH about the type of tests NJH that will or might be scheduling for you or could be decided to be schedule for you. That might help you to have a better understanding in determining your decison to go to NJH. If you don't have them, the explanations of the type of tests, call your scheduled representative assigned to you and ask for it to be sent to you. You are fortunate to have the doctors you have there in Vegas who apparently did more for you than my local pulmonologist. However, your MAC and BE may have been further advanced than mine at the time I became involved with my local pulmonologist. Not having any concrete answers etc. from my pulmonologist and not understanding all about BE and knowing of NJH.....I took it upon myself to go beyond the local pulmonologist by going to NJH. No local doctor here recommended NJH to me however when I mentioned to them that I made an appointment there they all knew of it and praised it.
Barbara

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Replies to "I have MAI/MAC and Bronchiectasis. Apparently all is not bad enough to begin antibiotics as told..."

Thanks for info. I have my schedule for when I go there. They have been great. 🙏for you