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DiscussionCLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
Replies to "@kristyinoregon I am so upset for you in losing your neurologist. We put our faith and..."
Hello Becky,
Thanks for your response to my post. You mentioned the prednisone and Cellcept didn’t help you at first. I have noticed that many of those who had a positive response have also had an prednisone infusion. Did you ever have that? I understand it’s a really high dose, and while I would not look forward to starting over on a prednisone taper, it might be worth it. Thoughts?
I really just want to find treatment that improves the lesions in my PONS, and hopefully, my symptoms…..CLIPPERS or not.
How are you doing these days?