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Trigeminal neuralgia: What helps stop the pain?

Brain & Nervous System | Last Active: Aug 21 7:08pm | Replies (127)

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@daaboss

Very odd. I'd written up a fairly long post on one treatment that worked for me. But it seems there is no way to find it, or retrieve it. Does anyone think it just got deleted since someone didn't agree with it??

I wanted to update it, since I found an effective treatment with no medication that I could write up. But, I wanted to UPDATE what I already wrote. OTOH, if content just gets obliterated, I'm not going to waste my time. Is there some system to retrieve what I wrote and posted about TM??

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Replies to "Very odd. I'd written up a fairly long post on one treatment that worked for me...."

How disheartening for you, daaboss😳! I totally empathize and commiserate.
I can only share what I've learned over the past year when aiming to post on this site:
Generally, my posts get "loaded" rather quickly and fully. However, from time to time, if I have a medium to lengthy post, the little "wheel" (what shows on my computer, anyway; not saying that it shows on everyone's screen) just spins and spins and spins...and all too often does NOT stop even after leaving it alone for several minutes, so I've had to get out of the site altogether. THAT results in wiping out what has taken my time, energy, and effort from showing up on this site! YES, devastatingly upsetting! GONE!

🖥. So this is what I learned to do:
As I type up my comments, developing responses to members, I COPY AND PASTE onto a word document page opened on my extra screen to my right. As a writer, I could not live without that extra monitor since I use it for many purposes. So having cut/pasted what I'm attempting to post to this site, I complete my comments and press REPLY. If things go right, it will successfully upload and post😁! If not, I have not lost what was composed since I have followed the aforementioned process.

WHAT NEXT? This is what I then do:
I'll go through what I saved and fine tune it without eliminating what I perceive is important/necessary. SAVE that, COPY/PASTE onto the mayo connect screen (in the section that it's meant to appear), then again press REPLY. Generally, I have success😁!

🤔BUT WHAT IF STILL NOT LOADING?
Then I've (on at least 2 occasions) DIVIDED THE POST and labeled Part A, upload that, and then Part B, and uploaded also by pressing REPLY each time. EACH part has a notation at the very start, informing the person to whom I'm replying, or even just a "general post" that I've divided the response into labeled Parts A and B. Why do this? Because then my lengthy post gets uploaded and "transported through" with BOTH SECTIONS successfully uploaded👍🏼😊.

I've on rare occasion run into what has happened to you: A brief to medium post which (on my screen) shows that it has been uploaded HAS NOT! So my time, effort, etc was a waste, making me feel not only frustrated, but also augmenting the negative thoughts that I have toward the inescapable technology eccentricities🤨. If I'm undergoing an especially difficult pain episode (due to a plethora of medical issues) then I just GIVE UP because the stress of the situations inflict the intensity of my pain. NOT worth it, so I chuck it out of my mind altogether. YES, there appears to be "something" that can happen between my pressing REPLY and whatever gremlins may interfere with successful transmission🤣. I'm not a tech enamored person, just respect what I've learned to do and how helpful those offerings are to my interests in writing, research, etc., and the ability to participate in the only 2 media applications that I've chosen: this site, and Next Door. I do not use any other, not FB or Twitter, or any other. NO participation in any of those.

I've applied to this posting, the steps described above of having copied/pasted onto word document blank page on right-hand screen( do have a very long computer table). WORTHWHILE for me. You can perhaps try it out with what you offer to the site. I agree with you that it can be confusing trying to navigate this site. ONLY RARELY has the "Edit" mode been offered and I have edited when possible. Don't understand why it's so randomly and inconsistently offered...

I hope you have better luck with future postings. You certainly have my support and understanding with what you experience. 👍🏼💻🖥

Please rewrite your info about your treatment. I am new to this forum so I do not know what happened to your post. however, I beg you to write it again. This is selfish for me to ask you to rewrite, butI have tried so many treatments that haven't worked, I will try anything to stop this pain I have had now for 3years. Thank you so very much, and I am glad hear you are better. Susan Lurding