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PRRT side effects and results

Neuroendocrine Tumors (NETs) | Last Active: Oct 24 7:32am | Replies (39)

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@sophiarose

After my 2nd PRRT I had a MRI with contrast of my head and spine the only thing that showed is a stenosis of the C2/3
However the PET scan showed a new area of metastasized NET in the C2
I did my 3rd PRRT
I will get my 4th on 10/9
Has anyone had metastatic NET of the spine? How was it treated?
It has now metastasized to my C,T&L
Thank you everyone for your support

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Replies to "After my 2nd PRRT I had a MRI with contrast of my head and spine the..."

Yes. I have had 4 treatments of PRRT. I get a quarterly infusion of Zometa. This is to strengthen the bone. Side effects for a short period is my bones seem to ache.