I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five of 16 lymph nodes. Was monitored by oncologist with no experience in carcinoid cancer for seven years mostly via annual CT scans and early on a couple of Octreoscans. Self-administered Octreotide injections for only a few months. I was symptom free from Carcinoid Syndrome at the time.

Roll the clock forward seven years and I found out all was not as good as we thought. Went in to ER for what my wife thought was a heart attack and found out tumors had metastasized to liver, pancreas, mesentery, and bone. After switching doctors to a more renowned hospital in the Cleveland area, I was put on Lanreotide. I currently have Stage 4 illness that is inoperable.

I was told of no diet restrictions. I even asked directly to doctor who is now treating me. Was told there are no diet restrictions.

I have been eating raw carrots, brocolli, and celery for lunch for years and have not stopped after Lanreotide. I also eat apples (skin on), and many forms of berries. I also take Metamucil once daily at the advice of my colorectal doctor. I am not experiencing problems with diarrhea but have bloating usually late in the day, and facial flushing occasionally.

Should I not be eating raw veggies and fruits with skins on them? Is this sound advice even if I am not having regular symptoms for carcinoid?