I had a necessary bilateral mastectomy with reconstruction early stage— Anastozole for 5 years + Prolia as my only treatment. I had found a study out of Australia from an oncologist who listed many of these side effects and long term. I had 7 and 3 lymph nodes removed but they never got the sentinel node on one side. I developed lymphatic cording 2 years post surgery which most doctors were not familiar with but I finally found PT who specialized in lymphedema and cording and it helped a lot. I religiously did the exercises at home and then I discovered that yoga has the same exercises so I have since been sticking with yoga which helps so much.
Last year I had surgery for tenosynovitis after 2 rounds of cortisone which only worked temporarily, so post finishing anastozole.
I don’t know for sure but both side effects are on the list.
I don’t think they really know and Tamoxifen apparently has its own issues. Lots of people do 5 and even 10 years with no issues. My surgeon believes it’s the removal of lymph nodes that can cause it.
It’s a lot and this is the place where no one will say that you are whining.