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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)
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@kristyinoregon

Don,
Thanks for your thoughtful and supportive response to my post. I appreciate your advice, as well. You suggested a rheumatologist, and I am happy to say the new clinic uses a multidisciplinary team approach and has a rheumatologist on the team. Though I am sad and a bit nervous that the prednisone and Cellcept seems not to be working for me, I am looking forward to moving forward with new lenses, a team approach.
So happy that you are feeling stabilized and that you sound confident in your treatment plan.
Best to you in the coming weeks. I will be in touch. Kristy 😊

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Replies to "Don, Thanks for your thoughtful and supportive response to my post. I appreciate your advice, as..."
Becky, Volunteer Mentor | @becsbuddy | Sep 16 6:59pm

@kristyinoregon I am so upset for you in losing your neurologist. We put our faith and trust in someone only to have it yanked away. But, it sounds like her co-workers are more than willing to take you and Clippers on. And it’s good to hear that they will send you to a multidisciplinary group. I think you are in the right hands!
And don’t think about the CellCept and prednisone. I was on the same combination at the beginning and it didn’t work for me either. All the doctors are on a trial and error plan because so little is is known about clippers. What is 1 thing you would like to have come out of this mess?

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