Hello @gprior,

I would like to join @colleenyoung and @lls8000 in welcoming you to Mayo Connect and also inviting you to join the NETs support group to meet other DIPNECH. If you post your questions and concerns in this group:

- Anyone living long-term with DIPNECH on lungs?
https://connect.mayoclinic.org/discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have/
Here you will meet many others who are living with this condition. I look forward to seeing your post in the NETs group. Will you post again there?