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@ashley2235

I too have become obsessed with my CA-19, but repeatedly told by doctors to relax. Do you worry about fluctuations within normal range (< 37)? I was 174 at diagnosis, hit 450 with 2nd round of FOLFIRINOX, switched to Gem/Abrax and immediately dropped to 75. Then been under 37 since. Had surgery July 2023. I was at 11 before surgery, but ever since have been moving between 17 and 30 with ups/downs.

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Replies to "I too have become obsessed with my CA-19, but repeatedly told by doctors to relax. Do..."

Ashley2235,
I believe gamaryanne stated at one time (at least) that it’s the trend. Is there a trend of ca19-9 going up? My transition into stage 4 occurred 4 months after I completed chemo and my ca19-9 was 24. My CA19-9 was 6 when I had originally had completed chemo. Just 2 weeks before my CT scan was clear. Imaging can be months behind the elevation of your tumor marker. My tumor marker continued to escalate and by the time my imaging (I asked for an MRI instead of a CT based on comments from this site) and endoscopy/biopsy validated the spread to my liver my tumor marker was at 3840. It’s good to know your mutations, and then speak with your oncologist on whether ca19-9 is a good indicator for you.