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Newsfeed Post in blog Ehlers-Danlos Syndrome

Research Updates III Sep 22 8:52am | By MeekaC (@meekaclayton)
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@esgsf

This is an outstanding reference to a clinic and blog from Tulane University that appears to have some great, actionable advice about living with EDS and navigating everything from nutrition, to fitness, physical therapy, supplements and special care with surgery and anesthesia. Thanks very much!

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Replies to "This is an outstanding reference to a clinic and blog from Tulane University that appears to..."
emo | @emo | Sep 16 8:53am

I’m glad you thought so too :-). I was so intrigued I wanted to share it with someone other than my doctor lol.

They don’t seem to update as often but it looks like they have a Facebook page as well.

This was the article that initially drew me in. Research is very early, but really intriguing: https://fasciainstitute.org/folate-deficient-hypermobility-syndrome/#

All the best to you.

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