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Has anyone tried Vyvgart for CIDP?
Autoimmune Diseases | Last Active: Sep 19 7:17pm | Replies (8)Comment receiving replies
I think there’s specific guidance with respect to this new treatment and whether it would be helpful as an option for CIDP. I’m not aware that this is something you’d just try. I’d like to see medical professional guidance on this or from the GBS CIDP FI medical advisory board.
Replies to "I think there’s specific guidance with respect to this new treatment and whether it would be..."
I made a post about it months ago after my neurologist brought it up to me. It is recently FDA approved. It has jumped thru all the hoops. My neurologist brought it up to me recently as an alternative to the Hizentra SCIG I have been on weekly for 3 years. I have not “tried” the new Vyvgart as yet as I am waiting to hear from others experiences.
The FDA approval:
https://www.fda.gov/drugs/news-events-human-drugs/fda-approves-treatment-chronic-inflammatory-demyelinating-polyneuropathy-cidp-adults
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Of course one would consult a specialist, but in my experience they want and expect my input and consent. This person is just seeking data from people that may have experience with this drug. Everyone is different we know. That does not mean you can't or do not want to hear of other's experience.