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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Hi my name is Gloria and I have a condition called DIPNECH ( for short) . I cannot find another who has it so we can compare symptoms etc. I had half my right lung removed 6 years ago and now I am awaiting having more removed as another tumour is slowly growing next to my heart wall. Would like to connect with another dipnech sufferer.
Replies to "Hi my name is Gloria and I have a condition called DIPNECH ( for short) ...."
Hi Gloria, I’m glad that your first surgery brought six years of better health. I hope you find additional info and connections in the NETs group. Best of luck with your possible future surgery.
Hello @gprior,
I would like to join @colleenyoung and @lls8000 in welcoming you to Mayo Connect and also inviting you to join the NETs support group to meet other DIPNECH. If you post your questions and concerns in this group:
- Anyone living long-term with DIPNECH on lungs?
https://connect.mayoclinic.org/discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have/
Here you will meet many others who are living with this condition. I look forward to seeing your post in the NETs group. Will you post again there?
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Welcome, @gprior.
You will find many members talking about diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) in the Neuroendocrine Tumors (NETS) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
Here are a couple of DIPNECH discussions to help get you connected. Click the link and introduce yourself here:
- Anyone living long-term with DIPNECH on lungs?
https://connect.mayoclinic.org/discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have/
See all: https://connect.mayoclinic.org/search/discussions/?search=DIPNECH