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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@artscaping

Good evening @martelig, I would like to welcome you with @johnbishop. Actually, he was my best supporter when I was faced with a diagnosis of SFN (small fiber neuropathy). Even though he has no pain with his SFN, he knows about and has researched the causes of neuropathy and the dozens of ways each of us may find effective and medically therapeutic solutions.

Does your wife do exercises that can strengthen her legs? Before she needs a wheel chair would it be possible for her to use a rollator? I am very happy with mine and feel that it gives me support when going visiting and out shopping. I also have two canes, one with a three-knob base and the other with a single-knob base. I always leave one in our car.....just in case.

Here is another hint that works well for me. I wear Yoga pants with stitched elastic around the bottom to keep me from tripping over wide-leg pants. They also have high-elasticized mid-drifts to avoid struggling with waistbands. About a year ago, I was fortunate to be invited to participate in PT training at Mayo Clinic. I was not only taught how to fall (carefully) but also how to get back up without damage or discomfort.

And finally.....do you have a loving companion puppy dog like a Cavalier King Charles Spaniel? "Roxie" made a lot of difference in my life. Now, I tame and teach tricks to adorable Chipmunks. They even climb up to look in my window when they think I have had enough sleep.

Thanks for reaching out for creative ways to add some joy and a few genuine smiles to your wife's life with PN. You may also enjoy life together just a bit more.

May you share life's happiness.
Chris

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Replies to "Good evening @martelig, I would like to welcome you with @johnbishop. Actually, he was my best..."

Bought a rollator to move her into the bathroom, but she can't stand now to get into it. She saw a PT, but doesn't have energy to do the exercises,likely due to anemia, asked the dr to check her ferritin which has been on the low side. We have a nice Corgi that helps brighten up our mood, and tries to help whenever she can.