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symptoms present but lab markers aren't high
Polymyalgia Rheumatica (PMR) | Last Active: Sep 15 7:08pm | Replies (23)Comment receiving replies
Yes, I have PMR (and now GCA as well.) My 2 inflammatory markers were never raised—this is true of up to 20% of PMR sufferers—markers are in normal range. Thst said, around 7 mg. is when your adrenal glands begin to start working again, and this can take awhile. You should not reduce when you are feeling pain because you are just encouraging the build up of inflammation and pain again. Experts who really know about PMR advise that you go back up to the dose where your symptoms were last relieved and then reduce much more slowly. This is the very best organization for info and support:
https://pmrgca.org.uk/
and they have a forum on Healthunlocked.com with knowledgeable volunteers to help you!
Replies to "Yes, I have PMR (and now GCA as well.) My 2 inflammatory markers were never raised—this..."
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"Experts who really know about PMR advise that you go back up to the dose where your symptoms were last relieved and then reduce much more slowly."
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This doesn't help you get off prednisone very quickly. Symptoms may not be caused by PMR/GCA. Symptoms may be caused by adrenal insufficiency because arthalgia and myalgia are also symptoms of adrenal insufficiency. Your symptoms might be something else entirely because a rheumatologist might say you don't have PMR anymore. It may be a combination of things.
How do volunteers on an internet website know what is going on if they don't even know your medical history or do a face to face medical examination? They can't even check your inflammation markers let alone know how much Prednisone a person should take.
I would rather take my rheumatologist's advice but that would be my personal preference.