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Pelvic pain - Persistent genital arousal disorder (PGAD)?

Chronic Pain | Last Active: Sep 19 10:48am | Replies (23)
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@mla26

I am a male and was diagnosed with a pelvic floor dysfunction and Prudendal neuralgia. However a MRI indicated that there was nothing wrong with my Prudendal nerve. My main problem is pgad systems. If I am vertical (standing, walking) I experience pgad. If I am horizontal (laying down) I am not bothered. It is like in the vertical position there is a pressure on my pelvic floor. In the last year I have lost a lot of weight. The mussel mass in my upper legs and waist area is quite light. I am wondering if the loss of mussel mass has allowed nerves in the pelvic floor to be irritated and causing pgad? I have not received a good answer on this. Anybody else experience this problem?

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Replies to "I am a male and was diagnosed with a pelvic floor dysfunction and Prudendal neuralgia. However..."
covidstinks2023 | @covidstinks2023 | Sep 15 8:15pm

mia26, Have you seen a urologist about this? Sometimes Botox is used for Pelvic floor issues. There are exercises you can do to help strengthen the pelvic floor that your urologist could give you.

I agree with you about weight loss possibly causing this as you probably lost muscle mass as you said.

Praying for you. Blessings....

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andytheman | @andytheman | Sep 16 5:23am

What is pgad? I have the urge to urinate anytime but my doctor said it was related to moving my bowels that makes me loose with my pelvic need to move my bowels

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Justin McClanahan, Moderator | @JustinMcClanahan | Sep 16 9:04am

Hi @mla26, I combined your discussion with an existing discussion titled, "Pelvic pain - Persistent genital arousal disorder (PGAD)?" - https://connect.mayoclinic.org/discussion/pelvic-pain-4/.

Here you can read through members experiences with PGAD and pelvic pain - @susanfalcon52 and @dancing1 shared their experiences and may have some insight to share.

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mmalone1804 | @mmalone1804 | Sep 16 1:35pm

You don’t say what exactly your symptoms are, that seem to be relieved when you are horizontal. I have not been diagnosed with PGAD, but my symptoms of low back pain and rectal pressure and urgency, also go away when I’m not upright. Like you, my doctors do not have answers for this.
I have been treated for pelvic floor issues, but that hasn’t helped.
I also believe it is being caused by something compressing the nerve when I stand. Have you started any treatments?

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kenc | @kenc | Sep 16 2:11pm

Have you consulted with a pelvic floor physical therapist?

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