Hello, I am a 14yr survivor. For the first 8 yrs after surgery I had a very difficult time due to a botched surgery. I was constantly bloated and was in constant fear when going to sleep because of horrible aspiration. I would aspirate on liver bile, which is like 100x stronger than stomach acid, it turned me into a walking flame thrower.
After 8 yrs my quality of life was so bad that I was ready to cash it in but decided to reach out to the Mayo clinic for a consultation that I could trust. As soon as I made the phone call they told me to get there ASAP so I made the 10hr drive. After a week of tests they told my that the original surgeon had badly put me back together and that they could fix me but they needed a few months to game plan.
Ended up that they had to do a complete revision along with a roux-n-y. They saved my life.
My life now is wonderful, I still have a occasional issue with the liver bile but it's 90% better and they put me on a off label prescription for the bloat and constipation that turned out to be a game changer for me.
I just turned 57 and can honestly say I look forward to another 20+ yrs. Prayers to you and your husband and if anyone that reads this has any questions, I would love to be of assistance.
Scott
@deepdive1967, so glad you found help at Mayo Clinic. You were quite young when you were first diagnosed with esophageal cancer. What led to your diagnosis?