@kristyinoregon
Kristy,

Sorry to hear about your losing your neurologist. I don't even want to think about how I would feel if the same happened to me. But do stay positive if you can, since this is the best way and happiest way forward when dealing with Clippers. I've gone from two hospitalizations with IV prednisone to 20 mg of prednisone daily, now for 3-4 months, and I feel stabilized. My neurologist thinks that for someone my age, 82, in my good previously great condition, I may be able to stay on prednisone for the rest of my life without adverse consequences. On a different topic, I would recommend to anyone on Clippers seeing a rheumatologist, since I have and I learned that they take a special interest, as a profession, in people with auto-immune issues. Kristy, your response to losing your neurologist was strikingly good: we have to be actively involved in finding the best guidance we can. And you did that! So positive!

Don