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Stage 4 Malignant Melanoma internal
Cancer | Last Active: Aug 1, 2023 | Replies (20)Comment receiving replies
Hi Pam, welcome to Connect. I'd like to introduce you to a few fellow members who have experience with melanoma. First, please meet @lynnkay1956 who is also living with stage 4 melanoma, as well as @lindabf and @psfrazier who are caregivers to family members who have metastatic melanoma. @texas7777 and @cynaburst have had early stage melanoma.
Pam, are currently not taking any treatment?
We look forward to getting to know more about you.
Replies to "Hi Pam, welcome to Connect. I'd like to introduce you to a few fellow members who..."
Thanks for asking. It seems better. I do have more energy but I still find I can only do so many tasks in a day. We are getting ready to sell our house and move back to Wisconsin, so I have been busy cleaning and packing and painting to get everything ready. I do rest when I need to.
Pam
Please simeoneone with liver melananoma write me.
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As of Aug.17th after seeing my Oncologist at Mayo he said it would be alright with him if I wanted to stop the Leukine. I had started taking the Leukine in November of 2014. So it's almost 2 years. I was having very little energy while I would be on it. I had to take it for 14 days on and then 14 days off. I could always tell the difference when I was on it. I also have Fibromyalgia so the further along I was on The treatment it seemed to effect my energy level. I have been off since Aug.16th and can really tell the difference. I also gained 20 pounds while on the Leukine. So far I have lost 5. I am happy about that. I will be going every 3 months again for my PET SCANS, which is perfectly ok with me. So I am tumor free since Dec 29, 2014. That was the day of my liver surgery at Mayo.
I would love to hear how other people are doing.