We were told nothing useful🥹 During his entire hospitalization the only thing they wanted to discuss was Hospice. He was discharged to a nursing/rehab center that I chose based on hospital recommendations. After he was there for 72 hours I began making calls to complain & get him discharged from a facility that I would not allow to care for stray animals😡 His oncologist was extremely uncooperative and I reached and eventually called his insurer and explained our needs and situation. He needed a hospital bed and a feeding pump in order to be discharged and I calmly explained to his case manager that if those things were made available I was able to give much better and consistent care at home than what he was receiving in a subpar facility. I received approval for the equipment within 24 hours. The insurance also denied further rehab coverage so he was discharged as soon as the rehab facility connected us to a provider for the needed equipment which was delivered the same day.
Since he has been home his recovery has progressed extremely well despite a few hiccups. He has regained weight and his kidney function (he has only 1) has improved dramatically. Post discharge his chemo was paused for 3 months for him to recover. It was paused again because of a good CT scan last month but another sudden onset of symptoms has us scheduled for another endoscopy Dec31.

The entire episode from the bleeding, sepsis, tube replacement, Hospice discussions, and insistence by hospital admins that I make decisions on the spot was overwhemingly traumatic. The recent recurrence of symptoms left me almost breathless. (The GI specialist who will perform the procedure had a very different and positive outlook than his oncologist and offered both a positive attitude and hopes for further improvement- but also acknowledging that his case was not curable, only treatable. I’m trying hard to do all the right things but the demands of being a 24/7 caregiver and assuming all the tasks we used to share is difficult. A lack of any social connection and lack of sleep is taking a toll. I also lost health insurance when he was separated from his job due to long term disability and age. I guess from my long and rambling reply it’s a bit obvious my loneliness is obvious . I apologize for my long post but if you were able to read all of it I offer my sincerest gratitude.