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What was your experience on Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (106)

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Profile picture for sharonmc18 @sharonmc18

Hi, I have been on Kevzara about a year. I think it is working but tappering off Predisone has proved difficult. Ideally I should not need Predisone any longer. So, you right to be concerned with staying on steroid for any longer then necessary. I’m am not sure whether I am dealing with Predisone withdrawal or cortisol insufficiency. If you begin Kevzara, don’t take your eye tapering. When I think about it, the tapering , because of the duration on steroids, causes me more discomfort and debilitation then anything else these days and it will take about a year of this roller coaster to hopefully fully have my adrenals kick back in. Hope this helps. Hang in term, for most of us we should be able to get off all these meds in time 😊

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Replies to "Hi, I have been on Kevzara about a year. I think it is working but tappering..."

@sharonmc18 make sure you have had a cortisol level test..
I wasn't able to stop taking prednisone , finally had a cortisol test and found that the use of steroids inhibited cortisol production. I now take hydrocortisone every day.