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MAC & Bronchiectasis | Last Active: Sep 16 11:55am | Replies (21)
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Replies to "Also....why wouldn't you qualify for the Arikayce? I've been on it since that date in 2019..."
Arikayce was not prescribed because my doctors were not in the clinical trials at that time, which were in Phase 3 at that point.
We need to be careful about saying everyone should be treated with antibiotics for their MAC. All the specialists, including those at NJH, use a complex matrix to determine when to start antibiotic therapy. The factors include the severity of infection, presence of nodules and/or cavities, symptoms or lack of them, other underlying conditions, whether a patient will be able to tolerate the 3 antibiotics, and whether conservative treatment - airway clearance with saline - may work to knock down a mild case.
There are many (probably hundreds) of people in this group who have managed to control MAC for years without antibiotics.
For the latest info, you may want to review some of the videos from the NJH patient conference last year, you will find that even there, not everyone is prescribed antibiotics.