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Treatments for Lichen sclerosis besides steroids
Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)Comment receiving replies
Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained it well, (I diagnosed that also). I began itching, white paper like skin, told my primary I thought it was lichen sclerosis, she gave me provide me cream for yeast infection. Kept telling her it was not that. I went undiagnosed for about a year. I did a little search for lichen sclerosis but not much. I came across this and so many others but did read. Was angry that I had this after taking such good care of myself. Then I realized that had nothing to do with being "blessed" with this. Finally got an approval consult for Gyno-Lichen Specialist. Got 2 horrible injections and biopsy. Left lesions and burnt area. Was given Clobetasol, stopped itching first day, then started again one week later. Clobetasol caused itching, thin skin, tears. Stopped using it. I already know I will not take another injection in that special place ( just saying that). Numbing it first did not help. Wanted to scream, and I did!!. Sorry, : ) Too graphic?? Happy I found this site and will purchase the creams. Thank you so very much for all who posted. I have learned a lot! WE will all get better and we do need each other to survive and thrive. I welcome any and all suggestions and info. Ciao
Replies to "Hello Everyone, I'm Mican (a girl). I diagnosed myself. Was always healthy except for hypothyroidism, maintained..."
@mican the injection and biopsy may have been what affected your skin even before you applied Clobetasol, which is why the Clobetasol caused the itching, thin skin and tears. Clobetasol works for me and I use it whenever I have a flare up. Unfortunately Lichen Sclerosis cannot be cured - it can only be controlled with proper treatment, just like all autoimmune illnesses.
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Hi,
I know its very difficult at times to cope with, however I am optimistic that we can find a 'natural' cure. I tried the Neem Oil & Green tea extract and I had the most blissful sleep I have had in a good few years and felt very relaxed the next day, albeit, a little hot in the cheeks (face) as one thing I did notice was my heart rate went up and felt I was producing more hormones than usual, and the LS was calm & peaceful for one day. The following day it flared up, and back to square one. The autoimmune disease is very clever, it always finds a way around anything you try new and that's why the 'steriod' cream works as it 'tricks' the autoimmune system. I have tried the Perrins complete creams and yes they work for a while and then it flares up again. I am going to ask 'Neem Oil' producers who are based in Europe would they be willing to do a Pilot trial as this oil is good, and it could be just what you combine it with, so shall keep you all posted.