I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
@susanlurding do you get numbness with your trigeminal neuralgia? I have trigeminal and occipital neuralgia and it seems noone understands. Doctors don't offer much. I hope you can find info on the surgery and I am sorry I can't offer any knowledge on that. Just a hello from a fellow sufferer.
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
thank you so much for contacting me. it means so much to me to know that someone understands and thinks this is real. Yes, I have the numbness also on my skin, my teeth, really every where I touch on my face is numb to the outside touch but excruciating right below the numbness. Unfortunately, the numbness does not numb the pain which is constant. I do not know how to explain this to someone who has never had this. My face many times a day gets beet red and feels like I have been dragged across asphalt. I have. this pain especially around my eye, eyebrow, lid, lining. This area is so swollen when I get up. in the morn that it takes me about half an hour of ice cold compresses to open my eye. My eye doctor says that the shingles did not go into my cornea, but because of the tissue damage my eyesight is much worse in my left eye. I'm not sure if this is what you call occipital neuralgia. I cannot tell you how I feel for you, and pray that you stop hurting. It is nice to converse with someone because I avoid contact with others so that I don't have to explain it over and over. especially since they tell me how good I look! Take care and if I can be of any help to you please let me know. I live in Louisville, KY, Susan Lurding
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
I am living in a new place and the neighbor's AC condenser is triggering really bad neuralgia in face. Neurologist says I need to move. I have hyperacusis (heightened hearing) which interacts with neuralgia unfortunate. I went out to sleep in my car one night!
Best wishes for some help to come your way, though I know how elusive that is.
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
@susanlurding
I’m sorry to hear about your suffering.
I have had some trigeminal nerve pain and post herpetic pain (affects my scalp, eye, lips, chin, etc.).
I’m not sure what tests/treatments you have already had or medications you are taking. I read through the links below and they provide a good overview of options. It is mentioned there is no cure for it but treatments to help relieve symptoms.
I pray that you are able to get options to help relieve some of your suffering.
@susanlurding
I’m sorry to hear about your suffering.
I have had some trigeminal nerve pain and post herpetic pain (affects my scalp, eye, lips, chin, etc.).
I’m not sure what tests/treatments you have already had or medications you are taking. I read through the links below and they provide a good overview of options. It is mentioned there is no cure for it but treatments to help relieve symptoms.
I pray that you are able to get options to help relieve some of your suffering.
I am living in a new place and the neighbor's AC condenser is triggering really bad neuralgia in face. Neurologist says I need to move. I have hyperacusis (heightened hearing) which interacts with neuralgia unfortunate. I went out to sleep in my car one night!
Best wishes for some help to come your way, though I know how elusive that is.
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
I have had TN 1 twice. Left side of head from an injury and six years later it came back. Worse pain I have ever had. I noticed that if I was careful I might only have one shock a day. A lifetime of habits now cause excruciating pain. So I wondered if I can avoid all shocks for three days what would happen. I did this for three days and continued for eight days. This was not easy. After eight days I decided to touch my nose which always produced the most excruciating pain to see what would happen. I touched it and nothing happened. It was gone. I was able to shave for the first time in two months. I know every case is different but this is what worked for me. It's worth a try. TN is demoralizing. Brain surgery was out of the question for me.
I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
The AC hum woke me at 3:30 am (it was 55 outside!) and when I woke I already had left side pain and numbness on my face and was dizzy. I bought this place three weeks ago. At this point I will lose money selling it but it would be worth it. I thought the AC would stop soon.
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I have had severTN for3 years.It was from shingles. it affects the entire left side of my head and face, even into my mouth and nose. I have tried everything I have heard of or told about by near pain management doctors, but nothing has worked. Does anyone know anything about the surgery that Mayo info talks about. The surgery that goes thru small hole in skull and put buffers between the trigeminal nerve and the others on top of it. This info said that was the only cure. I am praying for death I am in such pain. Only the thought of my dog being alone keeps me alive. If you know anything that has helped ANYoNE with this ,please let me know
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5 Reactions@susanlurding do you get numbness with your trigeminal neuralgia? I have trigeminal and occipital neuralgia and it seems noone understands. Doctors don't offer much. I hope you can find info on the surgery and I am sorry I can't offer any knowledge on that. Just a hello from a fellow sufferer.
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Helpful -
Hug
1 Reactionthank you so much for contacting me. it means so much to me to know that someone understands and thinks this is real. Yes, I have the numbness also on my skin, my teeth, really every where I touch on my face is numb to the outside touch but excruciating right below the numbness. Unfortunately, the numbness does not numb the pain which is constant. I do not know how to explain this to someone who has never had this. My face many times a day gets beet red and feels like I have been dragged across asphalt. I have. this pain especially around my eye, eyebrow, lid, lining. This area is so swollen when I get up. in the morn that it takes me about half an hour of ice cold compresses to open my eye. My eye doctor says that the shingles did not go into my cornea, but because of the tissue damage my eyesight is much worse in my left eye. I'm not sure if this is what you call occipital neuralgia. I cannot tell you how I feel for you, and pray that you stop hurting. It is nice to converse with someone because I avoid contact with others so that I don't have to explain it over and over. especially since they tell me how good I look! Take care and if I can be of any help to you please let me know. I live in Louisville, KY, Susan Lurding
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4 ReactionsWhat a generous message when you are suffering.
I am living in a new place and the neighbor's AC condenser is triggering really bad neuralgia in face. Neurologist says I need to move. I have hyperacusis (heightened hearing) which interacts with neuralgia unfortunate. I went out to sleep in my car one night!
Best wishes for some help to come your way, though I know how elusive that is.
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2 Reactions@susanlurding
I’m sorry to hear about your suffering.
I have had some trigeminal nerve pain and post herpetic pain (affects my scalp, eye, lips, chin, etc.).
I’m not sure what tests/treatments you have already had or medications you are taking. I read through the links below and they provide a good overview of options. It is mentioned there is no cure for it but treatments to help relieve symptoms.
I pray that you are able to get options to help relieve some of your suffering.
1. https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344
2.
https://www.mayoclinic.org/diseases-conditions/postherpetic-neuralgia/symptoms-causes/syc-20376588
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2 Reactionsthank you for responding with this info. I really appreciate any help
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1 ReactionBoy, that sounds awful. Are you able move? You must behaving mega stress!
Thanks @susanlurding. I am going to lose money but I don't have much choice. You are so thoughtful. Thank you!
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1 ReactionI have had TN 1 twice. Left side of head from an injury and six years later it came back. Worse pain I have ever had. I noticed that if I was careful I might only have one shock a day. A lifetime of habits now cause excruciating pain. So I wondered if I can avoid all shocks for three days what would happen. I did this for three days and continued for eight days. This was not easy. After eight days I decided to touch my nose which always produced the most excruciating pain to see what would happen. I touched it and nothing happened. It was gone. I was able to shave for the first time in two months. I know every case is different but this is what worked for me. It's worth a try. TN is demoralizing. Brain surgery was out of the question for me.
The AC hum woke me at 3:30 am (it was 55 outside!) and when I woke I already had left side pain and numbness on my face and was dizzy. I bought this place three weeks ago. At this point I will lose money selling it but it would be worth it. I thought the AC would stop soon.