← Return to Actemra coverage on Medicare in California?

Discussion

Actemra coverage on Medicare in California?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 23 8:24am | Replies (28)
Comment receiving replies
@dadcue

@redboat has an incredible story about how high his inflammation markers were. I'm not sure about how he was diagnosed with PMR but it was considered to be an extreme case. His response to Actemra was remarkable and as far as I know he is off prednisone and symptom free now.

Jump to this post

Replies to "@redboat has an incredible story about how high his inflammation markers were. I'm not sure about..."
redboat | @redboat | Sep 14 10:57pm

@dadcue It's true; weekly injections of Actemra worked great for me! Before starting Actemra, I was on 60 mg/day of Prednisone, which the ER doctors decided was needed after inflammation started making my eyes bulge out of my head while taking 20 mg/day of Prednisone. After starting Actemra, I tapered off Prednisone over a period of 6 months, with no relapses. I've been off Prednisone for almost a year now. After about a year of weekly Actemra injections, I went down to every other week, and I'm still doing that. I hope to get off Actemra in 2025.

VIEW AND REPLY