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Anyone been treated at Mayo Clinic for Ocular Myasthenia Gravis?

Autoimmune Diseases | Last Active: Sep 14 6:47am | Replies (35)
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@wcburns2

Hi MichiganJan. Just an update The Pyridostigmine 90 mg every 4 hours is working for me. It’s been 6 weeks.

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Replies to "Hi MichiganJan. Just an update The Pyridostigmine 90 mg every 4 hours is working for me...."
michiganjan | @michiganjan | Sep 14 5:54am

Well again thanks for the info I reduced my prednisone to 10 mg a day and next week plan to try 7.5. I would love it if I could get off entirely like you! Per the doctor I have to do it slowly but now I'm wondering about trying the increased dosage of mestinon.
Meanwhile, I have thin skin, some hair loss, and tinnitus and tinnitus the higher dosage of preon for several months

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michiganjan | @michiganjan | Sep 14 6:47am

That is wonderful and I am currently doing 10 mg of prednisone plus my 60 mg Mestinon two times a day hoping I can work my way to doing what you doing
The higher level of prednisone I was on for a while, apparently cause some issues. In addition to the osteoporosis. I have thinning skin, some hair loss, and no tinnitus
Thanks for the info

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