I have had PMR for three years. Have been on prednisone for the entire time at different dosages

I also tried actemra and prednisone together and the result was my sed rate dropped to zero, however my Rheumatologist sent me to a cancer doc because he saw something he didn’t like in my blood work which turned out to be MGUS. The MgUS has not gotten any worse so they continue to monitor it every six months. They did take me off the actemra at that point because they weren’t sure what was causing the Mgus.

I am currently feeling good but trying to get off prednisone slowly. Was at 20 now at ten, ten months of lowering the dose by 1 mg. I am going to try reducing further by 1 mg until I get to 5 mg and then reduce by 1/2 mg until I get to 2. At that point I will have cortisol tested to see if my body has resumed making it . If it has I will keep going on the reduction of prednisone until 0000. 🙏