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After many drs visits and lots of tests, I was diagnosed with a tortuous colon. It has affected my quality of life. I’m 65, my husband is getting ready to retire. We want to go places & do things but I’m afraid to plan. Has anyone had surgery? Was it successful? Is there a surgeon somewhere that specializes in this type of surgery?Thanks! Margaret
Replies to "After many drs visits and lots of tests, I was diagnosed with a tortuous colon. It..."
margaretsmith328,
Mine is on and off, in small intestines. And I have had 17 years of CIC, under the care of the same GI, the whole time. ( his name is dr. Arrogant-Ignore.)I just found out, 1 year ago, by accident that I have a redundant splenic flexure In large intestine- an extra length of colon, making the 💩have to travel through more turns and more miles of colon before it can get out. I am 65 also, I have decided that I do not like getting older because everything is worse and wearing out.
Since you are 65 and have suffered a very very long time, why did it take so long to diagnose? What have your symptoms been? What type of doctor diagnosed you? How did you get the diagnosis? Do you have other related symptoms? I am so sad, no pissed off, that you have had to suffer for so long. ShelleyW
I was born with tortous colon. I weigh 120-135. My irregular feces is not daily. More like every other day. Depending on how much or how little I eat. I can gain 7lbs in one day, and loose it in two days. I did alot of research on my issue years ago, and found Slippery Elm, to be a life, long, consistent, bowel movements since I started the pills. About 15yrs ago. They really work for me.
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I don’t have any information about this condition, but hope you find what you are looking for. Hopefully, there’ll be an option for treatment that will allow you to resume your plans. How are you feeling?