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PMR and MGUS/SSM/MM multiple myeloma

Polymyalgia Rheumatica (PMR) | Last Active: Sep 13 5:36pm | Replies (11)

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@bostonredsox1945

PMR causes severe pain in muscles; tendons; joints. The orthopods diagnose arthritis; the rheumatologists do their testing and many times cannot place the cause of the pain into a simple identification box. The ID doctors look at tick borne diseases but have no understanding of the pain of undiagnosed Lyme-Ehrlichia-Anaplasma-and-Bartonella when testing only shows convalescent titers of past exposure. And then there is COVID vaccine induced inflammatory pathology of the spine- multiple joints-muscles-tendons-causing daily debilitating pain.
PMR becomes the diagnosis when all of the above problems cannot be tagged with a confirmatory diagnostic test. Besides steroids; opiates; and biologicals with varying risks and side effects no one has an answer to removing the pain. Has anyone found Cannabinoids-CBD or THC--being safely used to take the pain away without steroids. Prednisone and Cannabinoids seem to have a negative interaction. I would appreciate any comments on pain control! Biologicals have a lot of side effects. High dosage steroids cause leg edema and blistering of legs with open sores that need long term attention along with other side effects. Thank you!

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Replies to "PMR causes severe pain in muscles; tendons; joints. The orthopods diagnose arthritis; the rheumatologists do their..."

Some times I use CBD+CBN gummies to help with sleep. As a nurse I have seen that THC and opiates can be a slippery slope with chronic pain.
The most helpful thing I have found to be helpful with pain is Pain Reprocessing Therapy. I can’t tell you how it works to turn off pain at my brain but it only matters that it works for me (and so many others).
Noted that I am still at Prednisone 5mg and tapering but so far so good. The PRT is just another tool to help me get there.