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PMR and MGUS/SSM/MM multiple myeloma
Polymyalgia Rheumatica (PMR) | Last Active: Dec 12, 2024 | Replies (19)Comment receiving replies
PMR causes severe pain in muscles; tendons; joints. The orthopods diagnose arthritis; the rheumatologists do their testing and many times cannot place the cause of the pain into a simple identification box. The ID doctors look at tick borne diseases but have no understanding of the pain of undiagnosed Lyme-Ehrlichia-Anaplasma-and-Bartonella when testing only shows convalescent titers of past exposure. And then there is COVID vaccine induced inflammatory pathology of the spine- multiple joints-muscles-tendons-causing daily debilitating pain.
PMR becomes the diagnosis when all of the above problems cannot be tagged with a confirmatory diagnostic test. Besides steroids; opiates; and biologicals with varying risks and side effects no one has an answer to removing the pain. Has anyone found Cannabinoids-CBD or THC--being safely used to take the pain away without steroids. Prednisone and Cannabinoids seem to have a negative interaction. I would appreciate any comments on pain control! Biologicals have a lot of side effects. High dosage steroids cause leg edema and blistering of legs with open sores that need long term attention along with other side effects. Thank you!
Replies to "PMR causes severe pain in muscles; tendons; joints. The orthopods diagnose arthritis; the rheumatologists do their..."
Hello! I haven't been diagnosed with PMR, but if I pushed for more Dr appts/tests, I suspect that may be what they would determine. I was diagnosed with MGUS early this year, and have had 3 vertebral fractures, none this year tho. Over the course of this year I've had strange pain with increasing intensity in my lower rib cage area, posterior, as well as front of pelvic bones. Feels kind of muscular, but I have a ton of tenderness to the touch as well as some possibly lumpy areas (again, hard to tell in these areas!) but it is for sure not fun. And of course, the normal spine stuff that goes with my degeneration. Att this time I'm not interested in more tests/Drs than I currently have, and I would not take steroids unless utterly unable to function - and I am for sure not there. I do all the things such as diet/exercise/etc, and I also do use CBD + THC for pain relief. For me, the combo works better than one or the other, any reputable vendor will share that info with you and talk about the cannabinoids, and the need for full spectrum for best results; also a good topical CBD cream is really unbeatable for applying to reachable areas, and I have not tried a THC topical so can't report on that. I have long been a proponent of CBD for my spinal pain and started adding THC once it became medical in my state. A great balance for me can be a low dose 1:1, and I like that combo best. Of course it will depend on your own body, but I highly recommend trying it out as a helpful natural aid for pain. I'm going to do some more experimenting for myself, I've stuck with micro dosing when working and sometimes up it when I'm functioning (house cleaning has become more challenging at times) or at the end of a long day. Another thing I can highly recommend is stretching/yoga while you are micro dosing, this feels so good to the painful body! I'm not a Dr but I work directly with a Cannabis co as a part of my job, and as such I have a good amount of knowledge 🙂 I wish you the best, and hope you give it a try!
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Some times I use CBD+CBN gummies to help with sleep. As a nurse I have seen that THC and opiates can be a slippery slope with chronic pain.
The most helpful thing I have found to be helpful with pain is Pain Reprocessing Therapy. I can’t tell you how it works to turn off pain at my brain but it only matters that it works for me (and so many others).
Noted that I am still at Prednisone 5mg and tapering but so far so good. The PRT is just another tool to help me get there.